November 2009

Sorry it been so long since we updated.
We are back from mibg treatment in London, Hannah had a reaction so had half a dose and no chemo, which did mean she did not require a stem cell rescue. However, her bone marrow still took a bashing and she is now requiring platelet transfusions on a regular basis and blood too.
She is very tired although she has managed the odd day at school which is lovely for her as that is all she wants to be able to do. See her lovely friends and go to school just like any other 9 year old.
Her shoulder is the main point of her acute pain at the moment so we are looking to give her spot radiotherapy to that area, her pelvis disease is too spread to be able to pin point so we are hoping to go back to London in Jan to have another dose of mibg to help with the more widespread pain/disease.
Thankyou everyone who supports and helps us with our fight, you are amazing.