Sunday 30 March 2008

Update 30th March 2008

Hope everyone had a good Easter in the snow, apart from Grandma Me and Grandad who have just returned from their holiday in South Africa! Good time had by all. We had a good time with plenty of eggs and gifts and a trip to the Circus. Hannah is doing well as far as the NB goes, the Etoposide is allowing her to live her life and go to school and participate in all the things she wants to. She has had a dreadful cold which became conjunctivitis but after some drops this was cleared up relatively quickly. She has put on weight and is growing and has some hair growing back too. I wish to apologise for all the confusion with the website at the moment, apparently there is another mirror site running www.hannahedwardsappeal.org. which my updates have been going onto but I cannot personally load this up to see! This also shows our current total. Another apology is that our team for running the London Marathon has dwindled to two from four as Chris and I have both had to pull out due to injury. We have deferred our places to 2009 so we will train and be sponsored for then so don't forget. We also have a five a side football tournament in July and the Dragon Boat races in September to look forward to and I will keep you posted on all these. Hopefully our site will be back to how we all know it before too much longer and we can continue to raise awareness of NB and our fight to find a cure. Thankyou all for your ongoing support.