Hannah's Blog

November 2009

noreply@blogger.com (Mummy) — Sun, 08 Nov 2009 11:56:00 +0000

Sorry it been so long since we updated.
We are back from mibg treatment in London, Hannah had a reaction so had half a dose and no chemo, which did mean she did not require a stem cell rescue. However, her bone marrow still took a bashing and she is now requiring platelet transfusions on a regular basis and blood too.
She is very tired although she has managed the odd day at school which is lovely for her as that is all she wants to be able to do. See her lovely friends and go to school just like any other 9 year old.
Her shoulder is the main point of her acute pain at the moment so we are looking to give her spot radiotherapy to that area, her pelvis disease is too spread to be able to pin point so we are hoping to go back to London in Jan to have another dose of mibg to help with the more widespread pain/disease.
Thankyou everyone who supports and helps us with our fight, you are amazing.

Hannah's Daisies

noreply@blogger.com (dharmaflyer) — Wed, 09 Sep 2009 21:52:00 +0000

Hello to all readers of Hannah's blog. This is Lisa here, friend of Hannah and her family. I have found a way of helping Hannah's charity that does not involve running a marathon and climbing loads of mountains in 24hrs! I have been making these daisy brooches and hairgrips to sell to raise funds for Hannah's charity. If you would like to purchase one please click on this link here . All proceeds will go to Hannah's appeal. If you are able to crochet or are a budding designer and would like to create your own daisies to raise funds for the appeal, feel free to have a go. I would be more than happy to post and promote your designs. Who knows we may start a new craze!

Update August 2009

noreply@blogger.com (Mummy) — Tue, 25 Aug 2009 16:06:00 +0000

Hello

I had a scan and it showed some more disease. It is where it always was after my last treatment and I have new hot spots in my neck and pelvis. My right leg has been hurting alot but I have some medicine to help. But it makes me tired and grumpy so sorry if I am not myself.

I am waiting for an appointment to see Dr Gaze at UCHL soon to see if he can help with my disease. I would have mibg therapy which is a type of radiotherapy but for my whole body and I would be in a room for about 5 days twice over and then need my stem cells back.

Please can you sponsor team Hannah who are doing the 3 Peaks challenge on 4th September to raise money to take me to America for treatment, this might be required soon! Team Hannah are also doing the Dragon Boat racing like last year so support them with that too please.

School starts back next week, I have had a great summer, Florida and Center Parcs and camping. And I got to meet the Saturdays pop group!!

See you soon I am off for a sleep

Love Hannah xxxxxx

Birthday girl

noreply@blogger.com (Mummy) — Tue, 12 May 2009 10:37:00 +0000

Hello to you all

Sorry it is so long since we wrote but we have been so busy. H is fine and turned the grand old age of 9 on 9th May. She had a great time on her birthday and enjoyed a sleepover with her lovely friends.

I ran the London Marathon, seems ages ago now, really enjoyed it and thankyou for your support and sponsorship money. We are now training for the 3 peaks challenge in September along with the Dragon boat racing in the same month and we are holding another Cricket day in July too.

H had a horrible tummy virus all over the Easter Holidays so missed out on lots of fun and we still have all her Easter eggs untouched but doing my best to eat them!! She lost loads of weight and became very weak but the good news is she is eating well again now and slowly but surely putting it back on.

Clinic comes around once per month where H gets another months supply of chemo then we keep our heads down and off we go again. H has joined the school choir and enjoys Brownies and swimming and spending time giggling with her friends, just what life is all about.

See you soon
Clare

Feb 7th 2009

noreply@blogger.com (Mummy) — Sat, 07 Feb 2009 16:17:00 +0000

hi it isbeen so long since i last wrote.This week i had a great time because it snowed.And now i am going to tell you all about my week.Monday and tuesday school was closed due to the snow.I went sledging at bradgate park then i built a snow lady with boobies HA HA.Brownies is closed too uh everywhere is closed around here.You just can't get the right staff around here can ya.
On Weds school opened again and I got to see my friends, we played out on the field and built another snowman but year 6 boys came and stood on it! How annoying?
On Thursday, guess what, more snow and school closed again, but I had a great day as I spent it at my friend Olivia's house. We played on the Wii and build a big massive snow cat and then we bounced on the trampolene and all the snow bounced on us. Back to school on Friday and we had a reading test and either watched a film or played in the snow, guess which one I did?
Then I went with my Mum to give blood, it took ages she is so slow to bleed but I got plenty of biscuits!
Today my mum took me on a shopping spree that she arranged for my Christmas present, I bought some new clothes and two new hair bands.
Now for one of my jokes What vegetables do you find in the toilet? Leeks and peas HA HA.
See ya soon H xxxx

January 4th 2009

noreply@blogger.com (Mummy) — Sun, 04 Jan 2009 13:19:00 +0000

Happy New Year to you all.

Hope you had a lovely Christmas and managed to avoid the winter virus that swept through everyone! We have all had it but hopefully all on the mend now, still couging well but feeling lots better in time to go back to School and work!!!

Mummy and Chris are training hard for the Marathon now so any help gratefully received!

I am back to school on Tuesday and had a great time over the holidays. We did lots of things including seeing Joseph in London which was brill and Inkheart at the pictures.

I hope everyone is ok and keeping warm and bug free and welcome to 2009. Good luck, health and happiness to you all.

Love Hannah xxxxx

November 30th 2008

noreply@blogger.com (Mummy) — Sun, 30 Nov 2008 19:11:00 +0000

hi its me i am 8 years old you might have read that fact on my wedsite if you have not then listen .and you definately know my name and if you still dont n ot know that you will have to find out not really i will tell you now.my name is hannah its a nice name do you think so .anyway this weekend i went to a christmas craft fair it was so dull really it was just wet muddy water and cold wind. on sunday i went swimming it was fun later on in the afternoon i had a long drive home because i went to kent for the weekend and also i had a take away it was a lovely weekend and now i am at home now ok bye.

a joke to say bye
why did the monkey cross the road
because it wanted to get it i made it up my self it is very very silly now bye for the very last time bye.

Christmas Card Update...

noreply@blogger.com (dharmaflyer) — Tue, 18 Nov 2008 20:41:00 +0000

...gone to print today, so I expect they will be ready in the next couple of weeks. Thanks to the University of Leicester for their advice and support with this project. Whilst we wait you can view the final 4 images to the right of this post.
Lisa

Christmas Cards

noreply@blogger.com (dharmaflyer) — Fri, 14 Nov 2008 14:40:00 +0000

Hello visitors to Hannah's blog.
My name is Lisa and I am a friend of Hannah's.
I am helping with the Christmas card project.
Just as an update I have now completed 2 and will finish the other 2 designs over the weekend.
Hopefully they will be off to the printers next week so they should be ready in the next 2 weeks and will be sold in packs of 5.

November 12th

noreply@blogger.com (Mummy) — Wed, 12 Nov 2008 09:56:00 +0000

Hello everyone

Hope you are all ok and looking forward to christmas!!!!
Our Christmas cards will be available to buy really soon and they are great if I do say so myself!
I have a cough and a cold and don't feel great so not at school today but hopefully will be better for Children in Need day at school on friday and also my trip to the hairdressers on Saturday with my auntie Em. Big step for me!

I have another Brownie badge, my Entertainers badge and we came second in the Brownie Treasure Hunt by half a point. It was my school parents evening last night and I am doing ok but need to concentrate on my own work more!!

Hope you are all ok and will let you know when the cards are ready for sale.

Happy Birthday to my Grandad on 17th November, don't eat too much cake!!

Love Hannah xxxxxxx

My bike 10/9/08

noreply@blogger.com (Mummy) — Thu, 11 Sep 2008 18:56:00 +0000

Hi everyone,
Today I learnt to ride my bike without stabilisers!!! Yippee!!!

Back to school for me and into year 4 and enjoying my guitar lessons. Had two already and off on a Brownie trip to Drayton Manor next month too.

Hope you are all doing well.

Love Hannah
xxxxx

August 25th 2008

noreply@blogger.com (Mummy) — Mon, 25 Aug 2008 18:09:00 +0000

Hi All
Well I have run my first running race, one mile around Mallory Park racing circuit, Grandma Me got very wet watching me but I got a medal and a pair of socks for my effort!
Mummy did the 5k race after me so me and Grandma got even wetter!!

I am learning to ride my bike too and practising hard, Chris thought it would be a good idea for me to have pads for my elbows and knees just in case I fall off!!

Back to school on Thursday, I can't believe the holidays are over already, I have had a lovely time though.

Hi to Natalie and thanks for swimming with me last week, didn't Mummy look cold while we all waited for the flumes?

See you soon
xxHxx

Saturday 9th August

noreply@blogger.com (Mummy) — Sun, 10 Aug 2008 11:56:00 +0000

Hi
Already getting bored of Mummy wanting to watch the Olympics!!!!

Chris took us swimming though and I am training to be in the future Olympics can't decide on swimming or horse riding. Hoping to do a mile run on August 20th so maybe running will be my thing.

Off to see my Great Grandma tomorrow who is 90 next weekend.

Have a great weekend

Love Hannahxx

my great day! Aug 7th 2008

noreply@blogger.com (Mummy) — Thu, 07 Aug 2008 19:47:00 +0000

I went swimming today with Paige and Ellie Mai, Grandma Me and Auntie Chrys. We had a teddy bears picnic and a treasure hunt too.
I love the summer holidays!
Then I went to Bradgate Park with my friend Isabel we climbed up some rocks and took our nets in the stream, didn't catch any fish though! And a dog ate our cakes!
Home now and off to bed.

Bye

July Update

noreply@blogger.com (dharmaflyer) — Sat, 19 Jul 2008 12:15:00 +0000

Hello everyone, thought I should write to update you all on how things are going. Hannah is well and still on the oral chemo, she now weighs enough to have tablets once a day instead of measuring out the liquid which is a lot easier. Her last clinic appointment showed her bloods to be all normal and that she is growing and obviously putting back on all the weight she lost, and more besides!! She broke up from school on July 11th and finished year 3 and attended most of it which is great. She performed well as part of team Mexico in sports day in the last week of term and managed to dodge the hail, thunder, lightening,rain etc. Hannah and I did manage to run the Race for Life though this year, an event we love to do but which was rained off last year, Hannah ran most of the way and told me I had not done bad considering my age! Bless her. The football day down in Kent was a huge success and we raised around £700 which is fantastic. Well done to Hannah's Heroes who made it through to the Semi's but lost to the eventual winning team. It was a great day and the weather was kind and thankyou so much to all those who helped organise and support on the day, especially Chris Lock, you are a star, thankyou. We have our Cricket Day coming up on the 2nd August and I am sure the sun will shine for that again just like last year, see the events pages for more info on that along with the Dragon Boats day in September which should be fantastic fun. Also Chris Lock, a great supporter of ours, is looking to get together a team to do the Three Peaks this year, if anyone is interested or can offer support to this Event please contact me on mailto:claredpalmer@aol.comand I will put you in touch with Chris, any help greatly received. Another wonderful supporter Chris Stav cycled the famous route from John O Groats to Lands End to raise money for our cause. A massive thanks to him too and he really enjoyed it to boot!! Further thanks must go to Glen who jumped out of a plane to support us and raised an amazing amount of money. To all our wonderful amazing supporters, thankyou from the bottom of my heart. We are now looking forward to the summer and hope the sun starts to shine soon.

Update 2nd June 2008

noreply@blogger.com (dharmaflyer) — Mon, 02 Jun 2008 12:56:00 +0000

Hello, just to let you know Hannah is doing well and is full of beans. She had a fantastic 8th Birthday and says a huge thankyou for all her cards and presents. We took her Ice Skating and she had a sleep over with her school friends, among other exciting things and she now feels very grown up. I think her favourite thing is still swimming!
She is completely over her op now and the port works well when she needs bloods doing.
Some desperately sad news, Alara Curran lost her battle against Neuroblastoma on 17th May. She was diagnosed just prior to Hannah and they spent many hours, days, months bravely battling this evil disease together. No more suffering now Alara, you are with the Angels.

Update April 27th 2008

noreply@blogger.com (dharmaflyer) — Sun, 27 Apr 2008 13:19:00 +0000

Hello All Hannah continues to do well on the oral chemo and is enjoying school and Brownies and the run up to her Birthday, she is determined for it not to be like last year and everything crossed it will be the opposite!! Just a blip to tell you off, Hannah is now fully recovered. The skin around Hannah's portacath seemed to have gone black and died and to cut a long drawn out story short, the surgeons decided to remove her port and put a new one in. This would be in a different location with a better blood supply to the surrounding skin. So last Thursday off she went to theatre and came back with it under her left arm which she not overly happy about and who can blame her?? She bravely took the plasters off herself and after a few days of being stiff and sore she was back to her old self! Next clinic appointment was due to be her birthday but as we are going no where near the place on that day we will probably go on the 7th! Whilst writing I wanted to inform you of the desperately sad news that Samantha Hughes lost her brave fight with NB on 15th April and is now with the Angels, we are sending love to her family. Thank you for reading and see you soon.

Update 30th March 2008

noreply@blogger.com (dharmaflyer) — Sun, 30 Mar 2008 13:22:00 +0000

Hope everyone had a good Easter in the snow, apart from Grandma Me and Grandad who have just returned from their holiday in South Africa! Good time had by all. We had a good time with plenty of eggs and gifts and a trip to the Circus. Hannah is doing well as far as the NB goes, the Etoposide is allowing her to live her life and go to school and participate in all the things she wants to. She has had a dreadful cold which became conjunctivitis but after some drops this was cleared up relatively quickly. She has put on weight and is growing and has some hair growing back too. I wish to apologise for all the confusion with the website at the moment, apparently there is another mirror site running www.hannahedwardsappeal.org. which my updates have been going onto but I cannot personally load this up to see! This also shows our current total. Another apology is that our team for running the London Marathon has dwindled to two from four as Chris and I have both had to pull out due to injury. We have deferred our places to 2009 so we will train and be sponsored for then so don't forget. We also have a five a side football tournament in July and the Dragon Boat races in September to look forward to and I will keep you posted on all these. Hopefully our site will be back to how we all know it before too much longer and we can continue to raise awareness of NB and our fight to find a cure. Thankyou all for your ongoing support.

H Factor

noreply@blogger.com (dharmaflyer) — Thu, 28 Feb 2008 14:23:00 +0000

Hello again.
Had to let you know that Hannah and her friends have made the final of H Factor at school! I knew you would all want to know.
And I have been promised that the totaliser will be updated very soon but we have raised £106k so thankyou to you all.